Why is organ donation so important to PSC patients?

This week has been the first ever PSC Awareness week and it is truly amazing to see how many people from all over the world have shared their stories and inspiring photographs of themselves doing great things to show the world that ‘they have PSC but PSC doesn’t have them!’ People coming together to raise awareness of … More Why is organ donation so important to PSC patients?

12 things you can relate to if you have or had PSC.

In honour of PSC Awareness week I thought I’d write something a bit light hearted. There are many things that PSCers or anyone with a chronic disease have to deal with on a daily basis, here are just a few that I’m sure all PSCers can definitely relate to! 1. Waking up feeling like you’re 80 years … More 12 things you can relate to if you have or had PSC.

As promised.

I’ve finally got round to sitting down and writing an update. I apologise for being so slack with the posting lately but it has been a busy few months! Apparently when you haven’t got end-stage liver disease you can go out and do stuff everyday! This is something I’ve learnt first hand over the past … More As promised.

28th Feb…

Today, February 28th 2015 is Rare Disease Day. Exactly two years ago on February 28th 2013 my life was completely turned upside down. I was rushed to hospital during the middle of the night because I was throwing up blood, a lot of it.!The rare liver disease I was diagnosed with when I was 17 … More 28th Feb…