I am delighted to announce that I have been invited to join the PSC Support Committee! The charity has been a huge support to me since I was diagnosed with Primary Sclerosing Cholangitis in 2006 and I am overjoyed that I am now part of the team! As you know, I am extremely passionate about … More An exciting announcement!
I wanted to write a little post just to say MERRY CHRISTMAS to everyone and thank you all for reading my blog and a special thank you to those who share my posts, links, photographs, ANYTHING that I share about organ donation (there’s a lot of it!) and PSC. You’re helping me make a difference … More The most special Christmas.
I thought id just write a little post as an update on how things are going. I am just over two months post-transplant now and I’m feeling good! I’m still having weekly appointments with the liver team at Derriford so they can keep a close eye on me. My new liver is happy and doing … More Post-transplant update and NHSBT Christmas campaign news.
After I went into theatre on Wednesday October 1st at 3.15pm, my family gave the transplant coordinator their contact phone numbers and they waited in the relatives room in the Liver Intensive Therapy Unit whilst the surgery was taking place. The coordinator told them that she would update them every two(ish) hours and to expect the surgery to … More 5 weeks ago my life changed forever (part two)
(Before you start reading, I just want to say that I started writing this post two weeks ago… in between recovering I have been busy living my life again so it’s taken me a while.) Well, I’m still here but I’m no longer waiting. I was hoping to write this post much sooner than this but I … More 5 weeks ago my life changed forever.
Today I went on the Charlie Taylor show on BBC Somerset radio to give an update on my wait for a liver transplant. I have been on the show twice before and will be regularly featured (every two months or so) to talk about life on the list so listeners will be able to hear what … More BBC Somerset Radio Interview 20/09/14
I’m still here, still waiting. The story is still pretty much the same. No real changes in symptoms or progression of my PSC so that’s very positive. One major thing that has changed is the itching, ITS UNDER CONTROL! Finally! After months and months of hell I finally tried the last option available to me (all … More July & August update.