In honour of PSC Awareness week I thought I’d write something a bit light hearted. There are many things that PSCers or anyone with a chronic disease have to deal with on a daily basis, here are just a few that I’m sure all PSCers can definitely relate to! 1. Waking up feeling like you’re 80 years … More 12 things you can relate to if you have or had PSC.
Today, February 28th 2015 is Rare Disease Day. Exactly two years ago on February 28th 2013 my life was completely turned upside down. I was rushed to hospital during the middle of the night because I was throwing up blood, a lot of it.!The rare liver disease I was diagnosed with when I was 17 … More 28th Feb…
I thought id just write a little post as an update on how things are going. I am just over two months post-transplant now and I’m feeling good! I’m still having weekly appointments with the liver team at Derriford so they can keep a close eye on me. My new liver is happy and doing … More Post-transplant update and NHSBT Christmas campaign news.
After I went into theatre on Wednesday October 1st at 3.15pm, my family gave the transplant coordinator their contact phone numbers and they waited in the relatives room in the Liver Intensive Therapy Unit whilst the surgery was taking place. The coordinator told them that she would update them every two(ish) hours and to expect the surgery to … More 5 weeks ago my life changed forever (part two)
(Before you start reading, I just want to say that I started writing this post two weeks ago… in between recovering I have been busy living my life again so it’s taken me a while.) Well, I’m still here but I’m no longer waiting. I was hoping to write this post much sooner than this but I … More 5 weeks ago my life changed forever.
Today I went on the Charlie Taylor show on BBC Somerset radio to give an update on my wait for a liver transplant. I have been on the show twice before and will be regularly featured (every two months or so) to talk about life on the list so listeners will be able to hear what … More BBC Somerset Radio Interview 20/09/14
I’m still here, still waiting. The story is still pretty much the same. No real changes in symptoms or progression of my PSC so that’s very positive. One major thing that has changed is the itching, ITS UNDER CONTROL! Finally! After months and months of hell I finally tried the last option available to me (all … More July & August update.