This week has been the first ever PSC Awareness week and it is truly amazing to see how many people from all over the world have shared their stories and inspiring photographs of themselves doing great things to show the world that ‘they have PSC but PSC doesn’t have them!’ People coming together to raise awareness of … More Why is organ donation so important to PSC patients?
In honour of PSC Awareness week I thought I’d write something a bit light hearted. There are many things that PSCers or anyone with a chronic disease have to deal with on a daily basis, here are just a few that I’m sure all PSCers can definitely relate to! 1. Waking up feeling like you’re 80 years … More 12 things you can relate to if you have or had PSC.
A few months ago, my transplant nurse asked if I would join her on an organ donation education day for ITU and A&E staff at Torbay hospital. Of course I said yes, I didn’t quite know what I was letting myself in for and I’ve never done any public speaking before so I didn’t know … More Organ donation talk at Torbay Hospital
I’ve finally got round to sitting down and writing an update. I apologise for being so slack with the posting lately but it has been a busy few months! Apparently when you haven’t got end-stage liver disease you can go out and do stuff everyday! This is something I’ve learnt first hand over the past … More As promised.
Today, February 28th 2015 is Rare Disease Day. Exactly two years ago on February 28th 2013 my life was completely turned upside down. I was rushed to hospital during the middle of the night because I was throwing up blood, a lot of it.!The rare liver disease I was diagnosed with when I was 17 … More 28th Feb…
I thought id just write a little post as an update on how things are going. I am just over two months post-transplant now and I’m feeling good! I’m still having weekly appointments with the liver team at Derriford so they can keep a close eye on me. My new liver is happy and doing … More Post-transplant update and NHSBT Christmas campaign news.
After I went into theatre on Wednesday October 1st at 3.15pm, my family gave the transplant coordinator their contact phone numbers and they waited in the relatives room in the Liver Intensive Therapy Unit whilst the surgery was taking place. The coordinator told them that she would update them every two(ish) hours and to expect the surgery to … More 5 weeks ago my life changed forever (part two)