In honour of PSC Awareness week I thought I’d write something a bit light hearted. There are many things that PSCers or anyone with a chronic disease have to deal with on a daily basis, here are just a few that I’m sure all PSCers can definitely relate to! If you would like to help find … More 12 things you can relate to if you have or had PSC.
I’ve finally got round to sitting down and writing an update. I apologise for being so slack with the posting lately but it has been a busy few months! Apparently when you haven’t got end-stage liver disease you can go out and do stuff everyday! This is something I’ve learnt first hand over the past … More As promised.
I wanted to write a little post just to say MERRY CHRISTMAS to everyone and thank you all for reading my blog and a special thank you to those who share my posts, links, photographs, ANYTHING that I share about organ donation (there’s a lot of it!) and PSC. You’re helping me make a difference … More The most special Christmas.
I thought id just write a little post as an update on how things are going. I am just over two months post-transplant now and I’m feeling good! I’m still having weekly appointments with the liver team at Derriford so they can keep a close eye on me. My new liver is happy and doing … More Post-transplant update and NHSBT Christmas campaign news.
After I went into theatre on Wednesday October 1st at 3.15pm, my family gave the transplant coordinator their contact phone numbers and they waited in the relatives room in the Liver Intensive Therapy Unit whilst the surgery was taking place. The coordinator told them that she would update them every two(ish) hours and to expect the surgery to … More 5 weeks ago my life changed forever (part two)
I’m still here, still waiting. The story is still pretty much the same. No real changes in symptoms or progression of my PSC so that’s very positive. One major thing that has changed is the itching, ITS UNDER CONTROL! Finally! After months and months of hell I finally tried the last option available to me (all … More July & August update.
The past few weeks have been full of highs and lows. It started off with the London Marathon. As most of you will probably know, my boyfriend, Josh ran the marathon for PSC Support on April 13th. It was such a good day. Some of mine and Josh’s family met up with a few other … More April into May.