Today is the start of National Transplant Week 2015 and this years theme is ‘7 Days To Say Yes I Donate’. National Transplant week is all about encouraging people to think about organ donation, to talk about their decision with their family and friends and to sign up to the register. A new study has reported that 50% … More It’s National Transplant Week!
This week has been the first ever PSC Awareness week and it is truly amazing to see how many people from all over the world have shared their stories and inspiring photographs of themselves doing great things to show the world that ‘they have PSC but PSC doesn’t have them!’ People coming together to raise awareness of … More Why is organ donation so important to PSC patients?
In honour of PSC Awareness week I thought I’d write something a bit light hearted. There are many things that PSCers or anyone with a chronic disease have to deal with on a daily basis, here are just a few that I’m sure all PSCers can definitely relate to! 1. Waking up feeling like you’re 80 years … More 12 things you can relate to if you have or had PSC.
A few months ago, my transplant nurse asked if I would join her on an organ donation education day for ITU and A&E staff at Torbay hospital. Of course I said yes, I didn’t quite know what I was letting myself in for and I’ve never done any public speaking before so I didn’t know … More Organ donation talk at Torbay Hospital
I’ve finally got round to sitting down and writing an update. I apologise for being so slack with the posting lately but it has been a busy few months! Apparently when you haven’t got end-stage liver disease you can go out and do stuff everyday! This is something I’ve learnt first hand over the past … More As promised.
Today, February 28th 2015 is Rare Disease Day. Exactly two years ago on February 28th 2013 my life was completely turned upside down. I was rushed to hospital during the middle of the night because I was throwing up blood, a lot of it.!The rare liver disease I was diagnosed with when I was 17 … More 28th Feb…
I wanted to write a little post just to say MERRY CHRISTMAS to everyone and thank you all for reading my blog and a special thank you to those who share my posts, links, photographs, ANYTHING that I share about organ donation (there’s a lot of it!) and PSC. You’re helping me make a difference … More The most special Christmas.