Today I went on the Charlie Taylor show on BBC Somerset radio to give an update on my wait for a liver transplant. I have been on the show twice before and will be regularly featured (every two months or so) to talk about life on the list so listeners will be able to hear what … More BBC Somerset Radio Interview 20/09/14
I’m still here, still waiting. The story is still pretty much the same. No real changes in symptoms or progression of my PSC so that’s very positive. One major thing that has changed is the itching, ITS UNDER CONTROL! Finally! After months and months of hell I finally tried the last option available to me (all … More July & August update.
If you read my last blog post you may remember me telling you that I am going to be featured on Charlie Taylor’s Saturday morning BBC Somerset radio show every two months or so. I will be going on there to talk about what life is like for someone living with PSC and waiting on … More BBC Somerset radio interview – 5th July 2014
I have been absolutely terrible at keeping this blog up to date over the past few months. I’d like to tell you there’s a really good reason for my lack of blogging but the truth is I’ve just had zero motivation. I’m finding it very hard to do anything productive at the moment. My brain … More Long time no blog!
The past few weeks have been full of highs and lows. It started off with the London Marathon. As most of you will probably know, my boyfriend, Josh ran the marathon for PSC Support on April 13th. It was such a good day. Some of mine and Josh’s family met up with a few other … More April into May.
Last Friday I was asked to do an interview on BBC Radio 5 Live to discuss my views on the new liver transplant study that is commencing in the UK later this month. In this study, 20 patients with severe alcoholic hepatitis who are aged between 20 and 40 years old will be evaluated and if accepted, placed … More Radio 5 Live Interview.
Wednesday 26th Feb 2pm – I am sat writing this from a medical assessment ward where I am waiting to see if the latest tablets I have been prescribed are going to provide me with any lovely side effects. These new tablets are (hopefully) to relieve the uncontrollable and constant itching I am currently experiencing, … More I’m allowed a little moan now and again aren’t I?
Well…kind of… Once somebody is placed on the liver transplant waiting list, an appointment is made for them to meet with a transplant surgeon who will explain the surgery in detail and ask the patient to sign a consent form agreeing to go ahead with the operation. They like to do this way ahead of the actual transplant taking place because when … More I have signed my liver away!
Well, once again it has been a good while since my last post. I feel like I’m beginning to start every post saying that but I’m going to try my hardest to start getting back into the swing of posting more regularly. The truth is, I’ve really lacked motivation the past month or so, I just haven’t had any real … More A boring little update.
It’s been a little while since my last post, mainly because I was completely wiped out by a fluey type cold thing for a week or so. Chronic liver disease + a cold = HELL. Considering I feel like I have flu most of the time anyway, an extra dollop of flu type symptoms and … More ‘Tis the season!
waiting for a liver. 